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Zakiah’s Meningioma Tumor Battle – The Nassau Guardian

Zakiya Butler has a day to hold a sympathy meeting for himself. She asks why she can’t make her life easier and simpler. She also goes through a time of recognizing that she must play the cards she has been dealt and accepting that her life is what she must live. So she realizes that she has to get up and keep moving the next day and can cry out loud whenever she wants.

Butler has good reason to throw a sympathy party after learning that meningioma, a tumor that arises from meningioma (the membrane that surrounds the brain and spinal cord), is growing on the left side of the cranial cavity. Most of it has been removed and regrown, affecting her vision in the only eye she has vision in. She will have surgery to remove part of the tumor again on Sept. 2. It’s a schedule. Butler, 41, thinks her next surgery will be more important than her first.

“I’m blind in my right eye, so this is even more important. Doctors are now recommending surgery to remove the part of the tumor that touches the optic nerve, which will give them radiation to limit future tumor growth.” it will be possible.”

There is no option to do nothing. Her doctor told her her vision would get worse if she didn’t do anything.

“They are adamant that I do the surgery.”

On July 11, 2017, Butler learned that he had an eight-centimeter meningioma on the left side of his skull cavity, rooted behind his left eye.

Although technically not brain tumors, meningiomas are included in this category because they can compress or compress adjacent brains, nerves, and blood vessels.

“In my case, given its size, this was exactly what it was doing, squeezing both the brain itself and important nerves, especially those connected to the left eye.”

The “silver lining of this storm cloud” in the news for Butler is that the tumor is grade 1, the most benign, non-cancerous tumor.

Meningiomas are also the most common type of tumor that forms on the head.

Six years ago, Butler sought treatment for a severe headache. She was referred to a doctor in Miami, Florida for further treatment. She traveled on 12 July 2017 for a consultation with her doctor. Her fate was that on the morning of July 13, 2017, the day she was supposed to see a doctor, she lost consciousness and had to be taken to the hospital. I had to have emergency surgery. They excised most of the tumor, but when they reached her roots, Butler began to bleed. They cut the operation short, leaving part of the tumor.

Most meningiomas grow very slowly and often do not cause symptoms for years. Butler’s doctors told her that the tumor had probably been growing since her teenage years before it was discovered.

Since that operation, she has seen tumor remnants each year. Until this year, it was stable without growth.

“When I had my annual MRI, I found that the tumor had doubled in size from last year. In particular, it touches the optic nerve behind the left eye, affecting vision.

“I don’t know what’s triggering the growth. This is scary,” she said.

With the surgery scheduled just over two weeks away, Butler joined a crowdfunding campaign via GoFundMe to raise the money he needed to cover the cost of vision-saving surgery and other recovery costs.

“I am a mother of two wonderful boys, an asset manager and advisor, a personal trainer, a fitness competitor, and an overall achiever. But I have done so through faith, grace, courage, and most importantly, the support of my loved ones. [Solomon, nine, and Zion, two] And contribute to all good in this world. ”

Until May 2021, her annual MRI results showed she was doing well. When she checked in with her doctor for a follow-up appointment, she told him of severe headaches and deteriorating vision. Butler’s MRI results were sent to a doctor in Miami, who contacted Butler two days later and made an appointment.

“I said, ‘Oh, Lord!'”

Butler’s doctor believes surgery is the best option. Similarly, the tumor contacts many blood vessels and nerves, so the entire tumor cannot be removed again. is the application of a series of radiation doses to She said it remains possible that it will grow again. She will continue to be monitored.

Butler immediately began preparing for a second surgery.

Her first surgery was an emergency. She lost her consciousness and recently learned that her medical bills had reached her $175,000.

She doesn’t know what her medical expenses will be in six years. But she’s grateful she has insurance, even though she doesn’t get her 100% coverage. She hosts stakeouts to supplement the funds she raises through crowdfunding to cover the medical bills that come from hospitals for surgeries, surgeons, accommodation, and radiation treatments.

As Butler prepares for another battle, she reflects on her 40 years on Earth, saying she sees a lifetime of life stories and problems that she describes as “strange.”

She was born with hypopigmentation and looked burnt, she said. I did. A few years later, her retina detached again. She said her eye doctor told her family not to redo her surgery because she was young. Her retina failed to reattach and she lost vision in her right eye. She wears prostheses. She has other issues that she said she fixed over the years.

Despite her challenges, Butler said she would give thanks and praise to God.

“Because of what I’ve faced, my life has become better because I had the motivation to do better,” she said.

Her beautiful boy is also her motivation, she says.

The signs and symptoms of meningioma usually begin gradually and can be very subtle at first, according to mayoclinic.org. Signs and symptoms, depending on where the tumor is in the brain or rarely in the spine, may include: Headache, especially worse in the morning; hearing loss or ringing in the ears; loss of memory; loss of smell;

Also, the cause of meningioma is not clear. Doctors know that something changes some cells in the meninges to grow out of control, causing a meningioma tumor.

Risk factors for meningioma include radiation therapy (radiation that involves radiation to the head may increase the risk of meningioma), female hormones (meningioma is more common in women, so doctors believe female hormones may be involved), hereditary nervous system disorders (the rare disease neurofibromatosis 2 increases the risk of meningioma growth) and obesity (BMI A high thyroid is a well-established risk factor for many types of cancer, and several studies have observed a high prevalence of meningioma among obese people. studies; but the link between obesity and meningioma is unclear.)

https://thenassauguardian.com/zakiyas-meningioma-tumor-battle/ Zakiah’s Meningioma Tumor Battle – The Nassau Guardian

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